Showing posts with label Christmas. Show all posts
Showing posts with label Christmas. Show all posts

Wednesday, December 16, 2015

Open Letter to My Daughter's Support System

Tis the season where you shop for your family and your kids' friends and your kids' teachers....and so on and so forth.

I will, without a doubt, post again about the holidays, but today's shout goes out to the host of people that brings me zipped coats and intelligible words.

I have to buy gifts for the people who I live with.  I have to buy for family members who are hard to buy for.  I have to buy for people who expect presents, but are not happy with anything.  I get to buy for people who are easy, and I get to buy for people who are excited for anything...but those are mixed in with obligation gifts.  And just because someone is easy or hard to buy for, in no way illustrates who I love deeply...

The list of people that I LOVE to buy for is short. 

The list of people that I would LOVE to buy for is ridiculously long.

And every year I am faced with squeezing the budget for that last category. 

But I want to take this moment to say to my daughter's teachers, aides, and therapists:

I wish I could buy each and every one of you a loaded gift card for Target or Staples, a trip to the spa for a massage, luxurious goodies, and a trip to Hawaii.

The work that you put in over YEARS of fighting for the same thing for my kid, is not unnoticed.  That we have been working and crying together for tied shoes and zipped coats and clearly written alphabet and spoken pronouns for 10 years...well, we are sisters and brothers-in-arms.  You know better even than most of my family how HARD it's been crawling up canyon walls to get to heinously behind, wrestling our way up from static and stalled.

You have been the backbone to Elise's scholastic achievement and her social successes.  I don't lay down on the job, but I also know I can't do it alone.  I know some tricks, but you know many more, and are continuously learning for MY KID.  You learn the hard way how 6-50 kids react in stressful situations.  You take even physical abuse protecting my child from herself.  You go home every night, trying to figure out what else MIGHT work for 10 kids...and you make mine feel like she is your most beloved.  You reach out to me when I cry at IEP meetings, crying with me and offering me comfort.

If I sat on Santa's lap right now, I would wish that every single time you opened your desk drawer, you would discover just exactly what you needed.

I will have to content myself with gifts that actually depress me to give you....in desperation that you feel how much I value you.

Because this year for Christmas, you gave me a kid who could talk on the phone with me and make sense, and, despite warning me that she may never be able to zip her own jacket zippers two years ago, she has done so, BY HERSELF this month, for the first time.  I have gotten more weepy about that than my son applying to colleges (shhhh, don't tell him).

Thank you.  You are the very best sort of elves.  You work magic with my girl and you do it with creativity and the most amazing ethic.  And, frankly, you don't get paid nearly enough for all the magic beans you plant in our lives.


Wednesday, December 7, 2011

December's Giveaway #1: Dancing with Max



I got to go to a conference up in Chattanooga, put on by Signal Mountain Presbyterian Church.  It was the night before my birthday.  Emily Colson and her father, THE Charles Colson, was speaking on their book about raising her son , Max, who has autism.

You know how sometimes you find yourself realizing that you attended something for a single sentence?  That it was God's healing gift just for you?  Yeah, that was me that night.

My sentence was this:  Emily Colson and her father were discussing whether or not Max really understood his profession of faith, whether he understood the import of his statement...and his grandfather (Chuck Colson) went to (I believe) his pastor for insight.  His mentor looked at him and said, "The Holy Spirit speaks Max's language."

As I've mentioned before, that is my sole fear in raising a child with special needs, with diagnosed mental retardation.  Will she understand Christ enough to choose him for her Savior?  And in that single sentence, God literally took away my fears.  It's okay.  God knows the way to Elise's heart.  And that's all there is to it.  Period.

And so, I want to share this book with you.  I bawl everytime I read this book, for the depth of truth that I get to read...Dancing With Max by Emily Colson.





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