Showing posts with label future. Show all posts
Showing posts with label future. Show all posts

Wednesday, March 7, 2012

Today's the Day. Think about it.


Today's the official day of "Spread the Word to End the Word."  You can read more about the movement here.
http://www.r-word.org/

I've posted how the word retardation actually comforted me in a odd way back at the beginning of our path with Elise, which you can read HERE.  And HERE are my thoughts last year.

I am afraid that I am yet more saddened by it's use this year....and more wistful in my plea.  I don't know if it will ever truly make me angry or cause me to get up in someone's face...although I have already been driven to calling out people in ways I never thought I would, due, in some manner, to Elise.

But this year, I am asking that you reconsider the ramifications of throwing the word "Retarded" around.

My daughter is not like yours.  My battles are not like yours.  My worries have taken on a life of their own. 

My nightmares are more simple now.  That my daughter will be taken advantage of.  That she will not be allowed to hold a job.  That all of the push toward euthanasia will include her.  That if we turn to more socialized healthcare, that her "quality of life" will be in question.  That she will never talk clearly enough to be understood.  That she will never be able to express her needs and wants.  That her physical limitations will prevent her from having fun experiences with the rest of the family.

When you allow the word retarded to roll off of your tongue, you trivialize all of Elise's struggles, all my fears, and you make me question our future.

Please remove the word "Retarded" from your vocabulary.  Please remove it from your children's.  Please protect my child from exclusion, please protect her future.  Please don't allow your immature vocabulary from your middle school years to wreak havoc on my child's and my present.

Thank you.

Sunday, October 16, 2011

31 for 21: #16 Fair's Fair

Our country fair has served to be a surprise source of angst over the last few years. 

It was my first public slap that my child wasn't "normal".  It also served as a healing of that very slap.  And gave me hope.  This year has become no exception. 

Today we went for the last day of the fair.  Because we had promised.  It's in the middle of the town, so we've passed it no less than 25 times since it set up.  They've been begging since the sky buckets went up.  Last year was such a lovely hit, they couldn't wait for the fun to begin this year.

The story for last year is HERE.

This year, the healing continues.  This year, Elise proved that some of her impulsiveness is coming under control such that she can participate in some rides that I would have NEVER considered for her in years past.  She was too tall for her beloved Nemo ride...she was exceedingly disappointed...but she handled that disappointment with far more grace than I had reason to expect.

Then, we were able to trust her on the Sky Swings...not to freak out and throw herself out of them.  Which trust me, is HUGE.  Mind you, WE were still strung out, but SHE did great!! 

Then, she got to bask in the joy of the bungie trampoline.  With ALL of us.  The possibility of equal, joint "normal" enjoyment is within sight again.  For QUITE a few years, I wasn't hopeful.  I really wasn't.

Do I think we will ever be empty nesters?  Eh.  Who knows.  Do I have confidence that there will be a lot of joy and fun in our future?  Absolutely.

And I can hardly wait.