"But I'm Hoooongry"

As, I've mentioned before, Elise will eat anything that is not nailed down. But we are having new problems. Not only will Elise rake food out of the pantry and fridge, but now she does so constantly and whines about it even more. She's always "hoongry".

We discovered that there was a broad definition of hungry when we were on vacation. She was "hoongry for the beach", there and so we learned that it also can mean, "I want".

The situation has become somewhat more...More. *sigh*

Now she is never satiated. Ever. She is always hungry. She is never full. Or, rather, I should say she is never aware that she is full. It is beyond frustrating.

She is pudging a bit, and it scares me. Many people with Downs tend to struggle with weight loss. As we all do, of course, but as their bodies are often not as coordinated, their exercise options can also be affected. Elise cannot swim or bike or, well, you get it. Developmental delays can affect their options as well. Many of them also have an inability to sweat, or are on medication, or have other medical conditions as well...

I am trying desperately to figure out her situation. Is she eating too refined food? Not enough protein? Does her inability to feel pain appropriately and general sensory issues affecting her ability to feel full? Is she eating emotionally? Struggling with frustration/depression? Is her ADHD medication affecting her appetite?

I am trying different combinations of food. I have quit buying crackers. We are trying to get out and get her moving, too. I may start brushing her again.

I even emailed my guest blogger from back in November whose son has Prader Willi Syndrome hoping for some tips. Unfortunately, the advice was more "lock everything up" than "here is how to magically fix it"...which I admit I was hoping for. She did offer a suggestion, though that has been helping a little. A snack schedule. Even though it doesn't change the situation, there is a measure of security for them, and you can tell them, "Sorry it's not 10, yet" or whatever...Elise likes knowing that she can eat when the alarm on my phone goes off. Interestingly, sometimes she will go off playing and actually forget, thanks to the security that she will get a snack, soon. So, at least that is helping!! Thanks, Lisa!!

This is the first time my Down Syndrome Patchwork books have failed me. (Neither Nutrition NOR Medical) I have to say it was terribly disappointing.

SO, anyway, Tiffany's Science Theater is back at it. I am hoping to have a solution, but at least I've discovered that I am not alone. There is a THREAD discussing this very problem on one of my favorite discussion boards, BabyCenter's Down Syndrome Board. And you lovelies encouraged me on Our Facebook Page. Thank you for that!! As I figure out solutions, I will certainly be posting to share the love...save you some of the crazies!!